Produced and submitted petition so that lymphedema patients would get the needed treatment paid for by Alberta Health Service (AHS) which was tabled in the legislature.
Later in 2006, all Alberta breast cancer lymphedema patients received treatment paid for by AHS.
Letter writing campaign and advocacy meetings
Face to face with the Health Minister.
We had our first lymphedema symposium with 400 people attending.
We met with the deputy health minister, requesting funded treatment for all lymphedema patients. As a result AHS established an lymphedema working group which included ALA.
We had our first meeting of the AHS Lymphedema Working Group.
We had our 2nd symposium at which we announced that a clinic to treat primary and non cancer lymphedema patients would open in Calgary. ALA definitely had an impact on this pivotal decision.
ALA was asked to be on an Advisory Clinic Committee to help with the logistics. From all the information that the AHS Lymphedema Working Group gathered, we were able to move forward quickly.
With the opening of the clinic AHS has set up a Patient Advisory Group. Diane Martin was honored to have been asked to co-chair with Lisa Warner (AHS Director Calgary Zone). Kate Nedjelski (member and Mother of primary lymphedema child) is also part of the advisory group.
Co-hosted a National Lymphedema Conference which was a great success with high level representatives from Alberta Health Services.
Held an Alberta Stakeholders Meeting: Bringing those who are involved in the care of lymphedema within the province of Alberta together to discuss strategic planning and a path forward regarding lymphedema care, education and treatment Alberta. The discussion theme was How to improve communication and access to health care in the context of lymphedema in Alberta and how to streamline the responsibility between the public and private health care system.
On December 16, 2015 ALA had a meeting with Health Minister Sarah Hoffman in regards to further funding, more clinics, backlog at the clinics for primary patients and help finding a doctor for patients.
Began working with a representative of Health Minister Sarah Hoffman.
Contacted all lymphedema clinics and certified lymphedema therapists to capture the number of lymphedema patients there are in Alberta. This information was passed onto the Health Ministers representative.
We continue to advocate for lymphedema patients by attending events. Still on the advisory group for the AHS lymphedema clinic. Sent letter to Canadas Health Minister to ask for help in getting all the other provinces health services to provide treatment for lymphedema patients. Help other provinces with information to help them work with their health services.
Communicating with the Internal Medicine in regards to establishing a diagnostic protocol for Lymphedema patients and continuing our work to advocate for all lymphedema patients.
First Lymphedema Education Night keynote speaker Catharine Bowman. Placed ad in the Canadian Family Physician Magazine. Presented at the All Party Caucus Meeting in Edmonton. Spoke with Deputy Health Minister.
Have had two lymphedema education nights – with keynote speakers Dr. Kennedy, Lori Radke and Elizabeth Girling. Meeting with Dr. J. Schaefer in regards to diagnostic protocols.
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Airdrie, AB T4A 0W8
Contact: Diane Martin
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